Optune Gio™ in public: getting out there

By: Dennis, Optune Gio patient

No such thing as normal 

When I first started using Optune Gio, I was self-conscious about it. 

I used to feel awkward and uncomfortable. People would ask me what I was wearing on my head and for a while, I didn’t quite know what to tell them. 

It certainly looked unusual, almost like something from a movie. 

And before I started using Optune Gio, I’d had a full head of hair. My brothers were all bald, but for me, my hair gave me my “edge.” It wasn’t easy to shave my head and start using Optune Gio. My pride took a hit. I remember when I was in the barber shop, the barber asked me twice if I was sure I wanted to shave it all off. I laughed, but said, “Yes!” 

It wasn’t easy to get used to my new look, but what helped the most was my support system. Having my wife, daughters, and grandkids cheer me up meant a lot. The more I used Optune Gio and the more people stared and asked me about it, the less strange it eventually became. 

I became accustomed to going out in public with it. 

I remember thinking one day, So what if I don’t look the same? What’s wrong with being different? 

Of course, I know it’s not that simple for everyone. I certainly was uncomfortable at first. Especially when I was out and about alone. When I was with my wife or friends, I felt like people gawked less. 

But there are options out there for those who might feel differently, like hats or scarves that can cover Optune Gio. That being said, I don’t think anyone should feel like they have to hide it. Personally, I like to stand out a little.

A positive attitude 

Now, when strangers ask me about Optune Gio, I just explain what it is and what it is designed to do. Most of the time, that satisfies them and I get positive comments supporting my efforts to fight this disease. I even recognize it as a good opportunity to educate others about Optune Gio. And who better to talk about it than an Optune Gio user himself? 

Usually, I still wear a hat when I go out, but that’s to protect the arrays—not to avoid stares from people. I encourage other Optune Gio users to be comfortable and confident when using Optune Gio in public. A positive outlook is so important, but it will take a while to find it. It took me some time, too. But I learned from my family and friends that I don’t have to hide Optune Gio from the world. Instead of letting the confused looks get to me, I can use Optune Gio with pride—or, at least, set aside my pride to use it (for me, that meant losing my hair). 

I’ve also learned not to worry so much about how I look. Most of the time, other people are just curious and that’s okay. Before I was diagnosed with GBM, I’d never heard of Optune Gio either. 

So instead of fearing those questions and stares, use those moments to bring a little more awareness to your fight. You just might meet a fellow warrior—or maybe a new friend. 

 

Dennis

©2023 Novocure GmbH. All rights reserved. Optune Gio and Novocure are trademarks of Novocure GmbH. US-OPG-00123 v1.0 November 2023

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Important Safety Information
 

What is Optune Gio® approved to treat?

Optune Gio is a wearable, portable, FDA-approved device indicated to treat a type of brain cancer called glioblastoma multiforme (GBM) in adult patients 22 years of age or older.

Newly diagnosed GBM

If you have newly diagnosed GBM, Optune Gio is used together with a chemotherapy called temozolomide (TMZ) if:

  • Your cancer is confirmed by your healthcare professional AND
  • You have had surgery to remove as much of the tumor as possible

Recurrent GBM

If your tumor has come back, Optune Gio can be used alone as an alternative to standard medical therapy if:

  • You have tried surgery and radiation and they did not work or are no longer working AND
  • You have tried chemotherapy and your GBM has been confirmed by your healthcare professional

Who should not use Optune Gio?

Optune Gio is not for everyone. Talk to your doctor if you have:

  • An implanted medical device (programmable shunt), skull defect (missing bone with no replacement), or bullet fragment. Optune Gio has not been tested in people with implanted electronic devices, which may cause the devices not to work properly, and Optune Gio has not been tested in people with skull defects or bullet fragments, which may cause Optune Gio not to work properly 
  • A known sensitivity to conductive hydrogels (the gel on the arrays placed on the scalp like the ones used on EKGs). When Optune Gio comes into contact with the skin, it may cause more redness and itching or may rarely cause a life-threatening allergic reaction

Do not use Optune Gio if you are pregnant or are planning to become pregnant. It is not known if Optune Gio is safe or effective during pregnancy.

What should I know before using Optune Gio?

Optune Gio should only be used after receiving training from qualified personnel, such as your doctor, a nurse, or other medical staff who have completed a training course given by Novocure®, the maker of Optune Gio.

  • Do not use any parts that did not come with the Optune Gio Treatment Kit sent to you by Novocure or given to you by your doctor
  • Do not get the device or transducer arrays wet
  • If you have an underlying serious skin condition on the scalp, discuss with your doctor whether this may prevent or temporarily interfere with Optune Gio treatment

What are the possible side effects of Optune Gio?

Most common side effects of Optune Gio when used together with chemotherapy (temozolomide, or TMZ) were low blood platelet count, nausea, constipation, vomiting, tiredness, scalp irritation from the device, headache, seizure, and depression. The most common side effects when using Optune Gio alone were scalp irritation (redness and itchiness) and headache. Other side effects were malaise, muscle twitching, fall and skin ulcers. Talk to your doctor if you have any of these side effects or questions.

 

Please click here for the Optune Gio Instructions For Use (IFU) for complete information regarding the device’s indications, contraindications, warnings, and precautions.

Novocure Websites

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On this site, patient and healthcare professional videos as well as all images labeled Optune Gio users, caregivers, or healthcare professionals depict actual patients, caregivers, and healthcare professionals.

All other depictions of patients and caregivers are actor portrayals. Patient images reflect the health status of the patients at the time each photo was taken.

 




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US-OPG-00063 v4.0 March 2025